1
<1
DMT Tried
2
Infusions
3
Emergency Steroids
∞
Naps Taken
Year since DX
Cristal’s Survival Kit
Look, I’m not a doctor. Even if sometimes I feel like one from the amount of research I do. These are the thingamabobs that have actually made my MS life slightly less of a dumpster fire. From infusion day snacks to this is my honest, lived-experience survival kit.
MS Essentials for Pain
These aren't medical prescriptions, just some stuff that made my 'shenanigans' a little more manageable. Tested by me, approved by my body.
Lidocaine Plus+ Cream
I try to change between pain medication and the lidocaine cream for pain in my arms and legs. This cream has done wonders!
When I used it: Every other time for pain in arms and legs. I bought 3 bottles and hid them around the house.
How useful it was: Honest to god, it’s the only reason I’m semi-functional when im not on meds for pain.
MS Essentials for Movement
With MS everyone enters in at different stages. I wont lie, I did get diagnosed early and thus have much of my movement. That being said, when I have a flare my left leg goes numb and balance becomes a figment of my imagination. So I use these to balance and move!
Walking Cane
Ive been using this one for 3 weeks now and compared to the other 2 I bought this one was the best. I like that is can be more compact and the grip at the bottom is strong. I will see how long it will last, so return for a 1 year update.
When I used it: On high numbness days this has been great to help with balance and movement
Car Door Handles
I feel personally victimized by this amazon listing. It says Car Door Handles for elderly. No amazon I use this too and I'm 30. Maybe to Gen Alpha i might be vintage but I am still spry!.... when im not in a flare or in pain... ANYWAY love these for cars, big, small, tall, or short I keep one in my bag so I feel safe and secure
When I used it: All cars!
MS Essentials for Heat
2026 summer with MS and MY GOD am I melting and hurting from the heat! These are what I have purchased... I am learning!
Portable Neck Fan
I have tried 3 body fans, this is the only one i found to work for me and my body. It has 3 speeds and works best with the cooling towels
When I used it: As of this summer daily. It fits well so I can clean around the house and not over heat. It also has a pretty solid batter. I do keep a portible charger though just incase.
How useful it was: LIFESAVER. I'm a California girl born in bread, but this years heat in Utah has should me and my MS who is boss.
4 Pack Cooling Towel
I bought 2 packs. These stay cool for a long time. ( Ex: lasted 2 hours in 102 F heat) With the fan its even better. I put in on my head, under my hat, and wrap around my neck with my fan around my neck and I survived out doors.
When I used it: Outdoor walks and events with high heat.
How useful it was: A+! loved them!
Women's Outdoor UV-Protection-Foldable Sun-Hats
A hat.... enough said. Now I liked this one because i need my head to breath so it has mech on top, it a brim hat, a light color to not attract the sun and it has a place for me to put my poneytail.
When I used it: Outdoor walks and events with high heat, but i could seeing my self using this on sunny snow days also.
How useful it was: Very usefull!
MS Essentials for Travel
These are my go to for travel. Whether plane, care, boat, anything that moves I have this on hand for my safety and sanity.
14 Grids Travel Pill Organizer Box
I love these! We have them filled with all the over the counter meds and my specilaity meds I get prescriped for pain and spasms. i have 2 in house for my first and second floor, and one in my car that gets moved to my travel bag when I leave the car or fly.
When I used it: All the time. Its my small case of sanity
How useful it was: So helpful! the labels allow my family and friends to know which pills are what and what they contain.
MS and Parenting
As a parent to a 1 year, I am trying to find ways to introduce her to how I am feeling and what is MS early. I want to be normal to see momma not at her best but that does not mean I love her less. So this are somethings that help with the explaining and add to bonding time.
Important Disclaimer
Listen, I’m just a person with a faulty nervous system and a lot of opinions. These recommendations are based on my lived experience with MS, not medical training. This is absolutely not medical advice. MS is weird and different for everyone, so please, talk to your actual medical professional before trying any new items, supplements, or life changes. Stay safe out there!